A Good Day...
Hughie had a good day today. They turned down some of his ventilator settings and his blood pressure remained stable without having to turn up his dopamine. His upper lobe in the right lung was a little collapsed in the morning, but the lobe opened up some throughout the day. The poor thing is still so puffy...he likes putting both hands on his chest and when he moves them, there are indentations on his chest where his hands were. I am counting down the days until he starts getting rid of all the extra fluid in his tissues. They turned off the bili lights today, so I got to look at his sweet face all day. He even managed to open one of his eyes a little...it is pretty hard with all the edema in his face. I love him...it is hard leaving him at night.
Ruby also had a good day. She loves being with her daddy. On the way home tonight I asked her to say "ma-ma" and she confidently stated "da-da" (she DOES know how to say ma-ma). Hugh was beaming, I on the other hand, was not amused :). They spent all day downtown visiting the Family Search Center, the Salt Lake City Library, and finished the day playing in the rain, stomping in puddles. She was in heaven. Hugh said she was so social with everyone she saw, waving at people 300 ft. away. She was even flirting with a little a 3-year-old boy at the Family Search Center...we may have trouble on our hands :). Ruby is such a special part of our family.
**We came home tonight to a dvd of photos waiting for us. The hospital where Hughie was born sent us pictures they had taken of him. I cried just opening the package. I had to post some because he looks so good....before he got sick**
{Our tiny 3 lb mister in his incubator}
{He looks so pink and un-puffy}
{I love his little hand resting so peacefully on his chest}
3 comments:
yay! i'm so happy to hear about hughie's good day. i'm excited to see him looking pink again someday. he really does look so healthy in those pictures. he is such a sweetheart.
i'm also glad to hear ruby had a good day - how could you not doing all those fun things with dad? i'm smiling just imagining her jumping in the rain puddles and flirting with a little 3 year old. she's so wonderful.
i love you all.
I am also so happy to hear of both the kids having good days! Hughie looks so adorable with his little hand on his chest. It is also so cute how his diapers look so big on him..such a little guy. :) He is too precious for words.
Thank you for the updates, I have been thinking about you guys a lot. I love Hughie too, I can't wait to meet him.
Thank you Hughie for reminding all of us that life is precious.
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