Mr. Hughie...
Today, overall, Hughie remained stable. He came down a little on some of his ventilator settings. He is still edematous which they treated with some lasix (diuretic) today in hopes he would pee off some of the fluid, but we didn't get a great response. His little abdomen has been dusky for the past day, and it was still dusky today. They did an x-ray and his bowels aren't moving right now...most likely because of the sepsis or stress on his body. Until his bowels start working again, they won't even try to feed him. We will keep a watchful eye on his little tummy. I talked to Hugh tonight, and it looks like his blood pressure began trending down tonight along with his hematocrit, so he is receiving another blood transfusion tonight. He seems to really like his transfusions, with his blood pressure and oxygenation improving afterward. I'm praying he will have a good night. He has been moving around a bit more lately, and it seems he is very sensitive to sound. His little eyes are covered most the time because he still needs the bili lights. Today, the nurse let me do some of his cares...change his diaper, clean his eyes, apply eye ointment, and assist in repositioning him. This was the highlight of my week, I finally felt like I could do something for my little man. I love him. I am praying he will have a good night.
Ruby and I cuddled tonight before she fell asleep. I love that little girl. She has been a real trooper...and I know she will be one awesome big sister to Hughie.
**I will post pictures tomorrow...having some technical difficulties uploading my pics
2 comments:
We are praying for Hughie and your family daily and we hope that you and Hugh will have the strength to push forward until Hughie can come home with you. Lots of love.
Scott & Whitney
it was really neat to watch you take care of hughie at the hospital yesterday. i'm so glad you are so comfortable with little bodies and lots of tubes. he's so lucky to have you.
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